Thursday, May 8, 2008

here is an update

sorry that it has been such a long time i have been kind of busy since i got out of school. For the last two weeks I have been down in Centerville Utah helping my Grandma, she had shoulder surgery and her other arm doesn't work either so we have a armless woman on the loose for a while oh no!!! well she is now starting to do better and get used to the fact that she can't use her arms but is still stubborn enough to think that she needs to be independent more then she was before the surgery sorry grandma I still love you tonz but it is the truth. she thinks that it is okay to do certain things even though the doctor said that it was not so trying to get her to listen is another story and we are finding out that she is not following instructions and that she is makeing adjustments to things to help her and not have to follow the doctors instructions. So that is one thing that I have had to deal with the other is that we are trying to get embree into Primary Childrens Hospital to get looked at because she hasn't gained any weight since she was 1 years old and she doesn't eat anything but crackers and frosted miniwheats and cheerios. She drinks juice, milk and water like crazy but eats nothing else and even somedays doesn't eat at all. We have tried everything. She has had an occupational therapist since she was 1 and still we have had so success. We are at a loss and the doctors that we have gone to till our most recent doctor in St. Anthony thought we were making all of these problems up for embree and that she was just fine but how can you say that she is fine when she hasn't been on the growth charts for both weight and height since she was 1 she is not even in the less than one percentile for both she is that far bellow. And also seeing that she has not gained any weight in a whole year i don't think that we are crazy to think that something is going on and that we need some more help with her. she looks completely healthy on the outside but i don't know what is causing this and i am starting to really get worried about her not that I wasn't before but i always thought the doctors were helping me to find answers and taking care of her, and now come to find out that they were not doing anything at all. Our new dr. is an angel sent to help, is amazing and is just as worried about embree as we are. He recently recieved all her charts from primary childrens and the other doctors and is not impressed with the information that was there. Come to find out that the other doctors didn't even chart alot of the information that they claimed that they did they didn't do and that they did certain test that we have never done and it worries me about what is really going on with embree is there things that we would have found out sooner if they had done the right thing first and listened to jace and i in the first place. Well we finally got an appointment with primary childrens for monday the 12th and hopefully we can get answers and help to help this little sweet heart of ours. We love her so much and hate to just sit and watch as she is having troubles and everything. Well that is my little venting and pitty party I hope that everyone is doing okay and hope you all know how much we love you. Well Embree and I will be down in Utah till the 12th unless the doctors need us longer but that is the date and then maybe after that we can come home and get settled back in to our little lives again and oh yeah welcome uncle cody home from his mission from the Baltic states, embree asks every day when cody is coming home and now we can say in less then a week he will be here and she gets so excited and dances and sings "cody home oh cody is coming home" I thought that that was so cute and had to share it. ( Cody is Jace's brother just so that you know)


maurerblog said...

I am so so sorry! I can't believe that the doctors really haven't helped you. Hopefully they will now find out what is wrong and be able to fix the problem. I know how stressful a child not eating can be. Keep me updated on her progress.

Lali Johnson said...

Hey Jess, call me after you talk to the docs, I wanna hear what they say. good luck, love you guys!

MegEddins said...

I hope that they can find something out for you guys. Poor little thing! That would be very frustrating. Good Luck!